Brain Tumour UK welcomes Government rethink on NHS reform

Brain Tumour UK Chief Executive Jenny Baker OBE has welcomed Prime Minister David Cameron’s announcement of fundamental changes to the controversial NHS reform bill.

The prime minister said the government had listened to fears about increased competition and more powers for GPs and would now slow the pace of change.

The announcement on Tuesday, 14 June, follows a “10-week listening exercise” during which government asked for comment on the controversial bill.

Some of the changes to the bill announced include the rebranding of GP consortia as ‘clinical commissioning groups’. These groups will have to appoint at least one nurse and one hospital consultant onto their boards.

Mrs Baker says: “This is a welcome step in the right direction. Brain tumour patients were concerned that the proposed changes would make things worse as GPs often are not aware or educated about how to deal with this rare type of cancer.

“Government is now saying that GPs should consult hospital doctors and other specialists in the commissioning process and if that means neuro-oncologists, neurosurgeons and other brain tumour specialists are to be consulted in the case of brain tumour patients, that can only be a positive development.”

The government is also now proposing to relax the 2013 deadline for the new GP commissioning arrangements.

“It is refreshing that government appears to have listened to patients’ concerns and we will have to wait and see whether this will be upheld in the coming months,” says Mrs Baker.
“Brain Tumour UK has done everything we could to ensure patients’ concerns were being put across to the right people during the government’s listening exercise.”

Taken from Brain tumour uK's website

"Approximately 48,000 people develop a primary or secondary brain tumour in the uK every year"

"Recognise me register my tumour" BTUK Report 2009

Brain Tumour UK has launched a campaign for all governments and health services thoroughout the UK to record all brain tumours in the official statistics - this will ensure that the most effective care can be given.


Brain Tumour UK's report 'Recognise me, register my tumour' has the support of many leading experts in this field.

8000 primary brain tumours are recorded on the official Cancer Registery but studies have shown that half of all primary tumours are unrecorded. Therefore 8000 tumours are unrecorded.Some are malignant but others that are low grade or benign can nevertheless be as deadly as cancer.

Secondary brain cancer is not recorded, even though this may be the cause of death in many cancer patients.

Brain Tumour UK has undertaken a review of post mortem studies and it has found that approximately 32,000 people are affected by secondary brain cancers but this is not recored in the official annual statistics. Secondary cancer in the brain is becoming increasingly common as advances are made in treating other primary cancers.

Our healthcare services must monitor this growing danger and be prepared to fight it.

(Taken from Brain Tumour UK website)

There is increasing campaigning to raise awareness of brain tumours and the increasingly important need to invest more money and time into research.

Ed's mum Sue was interviewed on 'Good Morning Wales' about Ed's tumour and the great need for more funds and research. Listen Here


Please visit the Brain Tumour UK website to find out more